Monday, February 18, 2013

5th Attempt

as I type this blog post tears flood my face 
Thursday February 28, 2013
Jaden will be getting a new shunt in his brain at Kosair Children's Hospital.
The CP Shunt he currently has is no longer working, as you can tell
from his latest MRI Image. The Cyst that surrounds his brain stem has doubled in size from last years Images.
We have battled this Cyst ever since Jaden had that terrible Brain Bleed when he was just 4 days old. The front of the brain is the worst place possible that a cyst could ever form and that's exactly where his is located. This will be the 5th Attempt to reach it and help it to drain. 
 Why 4 times and now 5? We are trusting His perfect plan even though it's so hard to understand.
James and I hate to see him go through this again, but we have no choice. He has had a couple of small seizures, his legs have been trembling, and he has been extremely slouchy which all links to the Cyst and it's size, not to mention the terrible headache pain it causes.
Updates on the surgery will follow.

I wanted to share this prayer that I wrote on Jaden’s first cyst surgery back in 2009

Lord of all life, Gracious Father, of the ups and downs of life, Lord of the seeming triumphs and supposed disappointments, who does not change in the midst of change, we come to You expecting great strength. As we pray through tough times we know You will give us today what we will need tomorrow. That's so amazing! We mostly need for the circumstances ahead - patience, courage, endurance, discernment, wisdom, and hope. You are our very strength in these tough times.

It is awesome to know that You have been thinking of us. Even better, it is so comforting to know what You think about us and our circumstances, Your faithfulness never fails and You always keep Your promises. The sure foundation of our hope is in Your strength and power. You are our sure Hope in these heart-aching worries, You have filled us with a living Hope that no trouble can destroy, and no fear can disturb.

Thank you for Your grace, offered even before we ask and provided way beyond our deserving.

A promise from Your WORD in Proverbs 2: 2- 6 reveals how to pray for wisdom, "Incline your ear to wisdom, and apply your heart to understanding; yes if you cry out for discernment, and lift up your voice for understanding; then you will understand the fear of the Lord, and find knowledge of God. For the Lord gives wisdom; from His mouth come knowledge and understanding." Fearing You simply means awe, wonder, and humble adoration.

The heavy responsibilities that stretches out before us this day, be with us in the hours of our decision-making and in Your grace, be with Jaden and continue to watch over him. Tenderly whisper in our souls the reassurance, " I have placed you here and will not leave you, nor forsake you." We trust You for answers and solutions, give us peace to do what time alone with You has convinced us must be done. We have bathed the decisions that must be made in prayer before You, and we Praise You in advance for Your guidance.

In spite of all these circumstances we face, we are committed to remain faithful to You, to our belief in Your goodness, and to the people who have said to us we have given them hope and inspiration for their own tough times. You are so faithful and we are begging all this in the name of Christ who lifts burdens and carries the load.


What's next? Only the Lord knows. We have to pray that God will give Dr Moriarty the perfect plan on this 5th attempt. Our hearts are very burdened and we are clinging to the verse Psalms 34:17 The righteous cry and the Lord heareth and delivereth them out of all our troubles.

Tuesday, May 1, 2012

Eye Surgery and 2Round of Botox Injections with Casts

Just handed our sweet boy over to our Surgery would think after 18 times of doing this, it would seem easy...well the answer to that is no...the thought of me not being able to be with him and all the unknown fears...the knots are deep down inside my heart, even still, after all the times we have been here at this place...but, i'm re-reminded that I'm so thankful that I do know Someone who is holding Jaden when mommy can't...and to think that He loves him even more than I...that's what helps ease up those knots I feel within my heart...thanks for not just thinking of us yesterday, lastnight, and today but for those of you who truly prayed for us...means more than you will ever know...we will update when he is in recovery...

Friday, April 20, 2012

Jaden Riding Izzy

the pictures below were taken with my phone...

Jaden Riding Izzy

We have started a new therapy for Jaden, "Hippo Therapy" ...he started 3 Fridays ago...we plan to go weekly for 30 minutes each session over the next 5 months...the goals we are praying for with Horse Riding are more upper trunk strength, balance, and to help with hip and leg was Jaden's 3rd Session and we can already see huge improvements with trunk and head control while riding...the 1st session was horrible...he hated the helmet on his head and he was so slumped over, but during his 2nd Session his therapists made some adjustments with his little saddle and special weight that fits over his legs and switched him to a smaller horse, and now after today his 3rd Session, he rode Izzy like a pro...he is trying so hard...we praise the Lord for opening up this door for us, and that it's so close to home...we don't have to drive hours away, but just only 20 minutes down the road...cannot wait to see how much he improves over the next several months of riding...

Izzy is a white horse with a yellow maine...she loves cookies "garlic bread cookies" so Jaden calls them, at the end of riding...Jaden likes to watch his therapist feed her the cookies for doing a great job riding...

Sunday, March 18, 2012

Happy 4th Birthday Jaden

4 years of Life...God has blessed us beyond measure...thinking back to this very day 4 years ago, tears flood my face, especially this picture of Jaden, so brand new...little did we know God's plan for our lives, at this very moment in time...I want to share something so dear to our hearts...A man from our Church wrote a poem about Jaden, days after his birth...He said it came to him during the middle of the night, he had to get up out of bed, fall on his face before the Lord and cry out these words, that are now typed out and etched inside our hearts...
so brand new...scar free

A blissful announcement, delightful, a bundle of joy,
The Lord has blessed us with a “baby boy”.
Jaden Kyler McBride, our hearts could not measure,
Such a priceless gift, a beautiful treasure.

How fleeting the happiness, for then came the news –
His little hands, tiny lips, and his toes turning blue!
There was worry, concern, doctors and nurses in haste,
He must go to Louisville - there’s no time to waste.

With great sadness and sorrow we traveled to KOSAIR,
Not suspecting the ordeal or what awaited us there.
This needful place, sanctuary, and haven for the ill –
Lord, please keep Jaden in the midst of thy will.

A turmoil of meetings, surgeries, and tests –
Yet Lord we never doubted – that thou knowest best.
There were ups, downs, setbacks --- doubts more than thrice,
And fear and trepidation gripped our hearts like a vice
But we overcame by prayers of family, friends, and the presence of Christ.

And then boundless glory! as in the Psalms we espied –
How thou keepest and saveth all the tears that we’ve cried.
What praise and adoration from our hearts did ascend,
For such care and compassion we cannot comprehend.

Now as we ponder this child, we can see only love –
And admit, he is borrowed – from thee up above.
And thru the haze of our anguish, it’s now plain to see –
Thou lovest Jaden, even more than we.

As time continues and the Lord tarries return,
We promise Jaden to you – Lord, of Thee he will learn.
We will teach him that he suffered the trials of Hell –
And how God blessed us --- and he lived to tell.

 1st Birthday

 2nd Birthday

 3rd Birthday

4th Birthday

We celebrated Jaden's 4th Birthday Thursday Night at his Favorite Place, Mr. Gatti's...It was a Great-Big-Super-Dee-Duper Barney Birthday Bash...Barney was our Guest of Honor...more Barney Birthday Pictures coming soon...

Thursday, March 8, 2012

Jaden's First Trip To The Library

This past Thursday Jaden went on a Field Trip to our Local Library with his Pre-School teacher
Mrs. Courtney and her daughter Avery.
This was Jaden's first trip to the Library. He got to choose his very own books to check-out, and even a few games to play at home as well. Currently Jaden's FAVORITE book is Chicka Chicka Boom Boom. We read it over and over again. He almost has the whole book memorized. At the Library they had a great big box with Chicka Chicka Boom Boom on the side of it. We opened it up to find a giant coconut tree with sticky letters all on it and directions of several different games to play with it. Jaden was a happy little guy. He wanted to check this out to bring home too. So we have been busy here at home Reading, Reading, and more Reading.

What a fun trip to the Library! Looking forward to returning all our books and checking out new one's.